CURE NATION: Do you have Spina Bifida or do you love someone who does? Then join your peers as we support the Spina Bifida Association at their first ever advocacy event, Teal on the Hill!
It’s all happening in Washington, DC on May 8 -10, 2018. FULL DETAILS
When you join the SBA advocacy effort, you will have the opportunity to meet with your Members of Congress to share your own story about living with Spina Bifida along with the importance of legislation that assists people who have SB.
Together, we can make our voices heard, advocating to help ensure everyone with Spina Bifida has access to high quality, affordable health care.
You have the power to educate lawmakers on the crucial issues affecting the lives of people with Spina Bifida.
VIDEO: WHY YOU SHOULD COME WITH US TO CAPITOL HILL
FIRST-TIMER? DON’T WORRY, you’ll be with experts
The Spina Bifida Association expert staff will guide you through an advocacy training Tuesday night that will prepare you for a powerful, meaningful, and fun day on Capitol Hill!
Who should attend?
Parents, Children, Grandparents, Adults with Spina Bifida, Clinicians, Siblings, Friends
What will happen while on the Hill?
The SBA will schedule meetings with Representatives and Senators. They hope for you to meet directly with your Members of Congress in their Congressional offices to share your story. In the event that they are unable to schedule meetings with your Members of Congress, they will schedule time with key staff members.
The training Tuesday evening will prepare you for a powerful, meaningful, and fun day.
What kinds of issues WILL we discuss at teal on the hill?
Important issues for the Spina Bifida Association include:
- Continued funding for the National Spina Bifida program and National Spina Bifida Patient Registry at the National Center on Birth Defects and Developmental Disabilities (NCBDDD), a part of the Centers for Disease Control & Prevention (CDC),
- Research,
- Disability rights, and
- Affordable and accessible health insurance and medical supplies and technologies.
Beyond these topics, it is up to you. Talk about what’s important to you and others you know. It may be challenges with finding a healthcare provider experienced in caring for someone with Spina Bifida; medical supplies or insurance concerns.
If it’s an issue on your mind, it probably impacts someone else with SB too.
Cure Medical is a proud sponsor of the 1st Teal on the Hill advocacy event, hosted by the Spina Bifida Association. We’ll be there, walking along side you at this legislative event.
Thank you for joining us to advocate for families who have Spina Bifida, nationwide! Learn more at https://www.sbtealonthehill.org.
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